‘Coping’ with a stoma

I got fed up with typing so thought I’d try dictation You’re coping very well with having a stoma though said my mother We’d been talking about my decision to have reversal surgery In the grand context of things yes I’m not sure exactly how you know this what with living in a different country […]

Stools and gatekeepers

At what point will I stop being freaked out by stool coming out of my stomach? Changing my bag and a solid-enough-to-have-a-shape stool is snaking its way out. It’s rectangular, I guess, following the shape of the hole they fashioned. You have no control over it. Nor do you know when it’s going to come […]

Ileostomy surgery

I haven’t felt able to blog lately. I don’t really know where to begin. Everything going on right now seems to personal, in many ways. It’s always been helpful to write things down. This past couple of weeks of my life have been really hard. I had my surgery, subtotal colectomy and ileostomy, which was […]

On caring for yourself

I haven’t blogged in a while. I’m on a high dose of steroids which doesn’t make it easy to put sentences together. I finally relented and accepted that my flare-up was not going away by itself. I deprioritised my work, if you will, and I can’t remember the specifics, but ended up taking oral steroids […]

A happy ending

It’s the toughest time of my life, and I feel the weakest I’ve been in my life. Had to go home from work. It was (according to the schedule) an easy day. I couldn’t do it. I couldn’t even do the easy day. I cried all the way driving home. Every day I don’t work […]

Matrix band, scalpel, it’s all the same to me.

I haven’t written anything in a while. Truth be told, I broke my laptop. I’ve got internet access on this iPad thingy, but I don’t like ‘typing’ on it. You don’t get the satisfying clickity click of the keys and I’m holding the muscles in my fingers like somebody having a cup of tea with […]

Sympathy, help, where to find it.

I’m angry and upset right now. I wish everyone had to spend a week with Colitis to know what it’s like. It wouldn’t be any use, because they would soon forget. I soon forget myself in periods of remission. I can’t start my new drugs for 3 weeks, and they may not even work. But […]

My despicable health

So here we are again… I am bleeding, have urgency, maybe only 5 toilet visits a day (because I’m holding it, would be more if not in work). My blood count is still low, so she wants me to reduce my aza again for another TWO WEEKS. FYI I’ve been on my normal dose all […]

3,2,1 – Something I am afraid of

Blog post challenge inspired by Swift Expression I’m afraid of having to have my colon removed. Because it will mean I have to have an ileostomy which is basically your intestine stitched to your stomach so your faeces come out and are collected in a bag – which you empty. It’s major surgery, so there […]