Try Honesty

I bought a wireless keyboard. It’s good but I still can’t do it lying down. I am being worked ragged. It’s kind of atrocious. I’m exhausted. I have an exam I’m too exhausted to do anything about. The thought of having to get up on a Saturday morning to go to class makes me feel […]

Medical obsessions

People walk up the stairs two by two Me, I’m one by one He’s so skinny I could blow him over I can’t decide if he’s being a baby Or if he’s just had enough   The nurse is kind, but stupid My questions unanswered Give up Just do it   I love my blood […]

New voicemail

Oh hi Rebecca, it’s Kate. Um I just wanted to say I’ve got your message. Um unfortunately we still haven’t got space for you to start the um infliximab as yet, but I will be in touch as soon as we have. Okay, thanks, Byebye. To listen to the message again, press 1. Beep. Oh […]

Sympathy, help, where to find it.

I’m angry and upset right now. I wish everyone had to spend a week with Colitis to know what it’s like. It wouldn’t be any use, because they would soon forget. I soon forget myself in periods of remission. I can’t start my new drugs for 3 weeks, and they may not even work. But […]

Thoughts in my head – should they stay in my head or not?

So. I had an interesting conversation with someone last night about online things. Online relationships. Anyway, I’ll come back to that. Oh God, this is all in the wrong order. So what is in a name? If you fall in love with someone called Erika, which of course you would because Erika is lovely. Things […]

Tale of the angry overthinker

Life deals the cards and we’re all bluffing Time heals no wounds I’m angry I shout at people who deserve it Like the boy doing a wheelie in front of my car Like the man, that man I’m angry at you God knows what I’d do if I saw you Probably hug you – I […]

My despicable health

So here we are again… I am bleeding, have urgency, maybe only 5 toilet visits a day (because I’m holding it, would be more if not in work). My blood count is still low, so she wants me to reduce my aza again for another TWO WEEKS. FYI I’ve been on my normal dose all […]