Ileostomy surgery

I haven’t felt able to blog lately. I don’t really know where to begin. Everything going on right now seems to personal, in many ways. It’s always been helpful to write things down. This past couple of weeks of my life have been really hard. I had my surgery, subtotal colectomy and ileostomy, which was […]

On caring for yourself

I haven’t blogged in a while. I’m on a high dose of steroids which doesn’t make it easy to put sentences together. I finally relented and accepted that my flare-up was not going away by itself. I deprioritised my work, if you will, and I can’t remember the specifics, but ended up taking oral steroids […]

Beginning to flare

It’s a feeling in your abdomen. It doesn’t hurt. But it’s moving. It’s uncomfortable. It’s making noises. It distracts you from anything else. All you can concentrate on is the feeling. Both sides. Up the left and down the right. It’s like something is living inside you. Something that doesn’t belong to you. Something unnatural. […]